"We met K when she was a week old. We were foster parents and not expecting a call about a newborn. Despite becoming her mom with just 12 hours’ notice – we adopted her the next year – my early months with her felt so natural.
I had been disabled for six years. While on a hike, I developed dysautonomia, which is secondary to a genetic connective tissue disorder called hEDS [hypermobile Ehlers-Danlos syndrome]. I experience a great deal of daily pain and can’t stand for more than a minute or sit upright unsupported for more than five.
As a result, I spend most of my day reclined. Her high need for physical contact in infancy fit my need to rest all day. She didn’t need a mom who could pace. She needed a mom who didn’t get bored lying on the sofa. We were a perfect match.
After a few months with K, we started to make plans. The first was a trip to a small island called Lummi off the coast of Washington state. We flew out of Oakland; a friend drove us to the airport and helped us check the bags. David pushed me in my wheelchair, and I carried K on my lap. Once in the air, we learned the hard way that air pressure changes can contribute to diaper blowouts, but the flight was, generally, fine."
For some disabled or chronically ill people, leaving the house isn’t possible at all. But for others, the barriers are structural. Composite: The Guardian/Getty Images
Continue reading the article online -> https://www.theguardian.com/wellness/2025/apr/15/parenting-disability-wheelchair
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