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Providing accurate and timely information about what matters in Franklin, MA since 2007. * Working in collaboration with Franklin TV and Radio (wfpr.fm) since October 2019 *
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Town of Franklin: Offices Closed Monday December 25 |
"Duchenne muscular dystrophy (DMD) is the most common fatal genetic disorder diagnosed in childhood, affecting approximately 1 in every 3,500 live male births (about 20,000 new cases each year).” Although there are medical treatments that may help slow its progression, there is currently no cure for Duchenne.
We began this journey with DMD in July 2013 when our 7-year-old son, Caeden, went to Children's hospital for a neurological evaluation and blood tests were conducted. We received a call several days later that his CPK levels were extremely elevated which indicates a muscle disorder. We then went to the Neuromuscular Disease Center at Childrens Hospital the following week where another assessment stated he was showing signs for Duchenne, Becker, or Limb girdle muscular dystrophy.
We were shocked to say the least and researched all the disorders and hoped for none but if it had to be one not Duchenne. Caeden had genetic testing done to determine the form of muscular dystrophy and told we would get the results in about a month. We received the call about a month later which diagnosed Caeden with Duchenne Muscular Dystrophy(DMD). We were beyond devastated and a lot of tears were shed and so much uncertainty.
Several weeks later we were told that Devin would need to be tested as well since it is a genetic disorder and it mainly effects boys.
Devin had his testing and another blow Devin was diagnosed with Duchenne Muscular Dystrophy as well. We were not even able to process the diagnosis for Caeden and now we had to digest the same diagnosis for Devin. So many emotions especially since our only two children have been diagnosed with such a devastating disease.
So where we stand right now is we live day to day and we love them. The boys have good days and bad days and we know due to the diagnosis there are a lot more bad days in the future. We had moved to a new home in July before all this happened and now we have a home with stairs to get in the house and for the boys to get to their bedrooms and that is not functional. The boys have a very hard time ascending and descending stairs. We need to add an addition so the boys bedrooms and bathroom are on one level and we have a lift to get them in our home from outside. The cost for this addition is $200,000.
On top of all the boys medical expenses this is very hard for us to accomplish. We had to purchase a used minivan as it is a little easier for the boys to get in and out of however at some point in the future we will need a fully accessible van and they are very costly. We know there are many other things we will have to consider or think about in the future.Please consider making a donation to help:
Right now HOPE is all we have. Hope that all these biotechnology companies and medical researchers will come up with a treatment that works to save our sweet boys and all the boys with DMD."
"There are two children that stole our hearts and we will not let Duchenne Muscular Dystrophy steal them"
C & D UNITED- For: Caeden and Devin Parisi |
Pope Francis 6 Franklin 1 @FHSSports @MassHSHockey @MyHockeyLive @In_The_Slot @BGlobeSports @MetroWestSports @HockomockSports— Coach Spillane (@FHS_PuckCoach) December 22, 2017
Final. Loss to Coyle Cassidy. pic.twitter.com/bH99JUdQpd— Sandy Sauer (@FHSCoachSandy) December 22, 2017
Amazing job to all of the girls and @FHSBVSWIM for bringing home the win against Sharon! Let’s keep the momentum going after break! #roadtohocks pic.twitter.com/5ks6TUG5XN— FHS Girls Swim (@FHSGVSWIM) December 22, 2017
[Boys Winter Varsity Swimming] Franklin HS defeats Sharon HS, 91 to 49.— FranklinAthletics (@FHSSports) December 22, 2017
Highlights: 200 Medley Relay of Cashin '21 Wang '19 Choudhury '18 Cashin '18 qualified to Sectionals & Cashin '18 Qualified for Sectionals in the 100 Breaststroke. #PantherPride
Franklin LADY swimmers defeat Sharon 99-77.— CoachP_FHS_Swim (@CoachP_FHSswim) December 22, 2017
Double event winners:
Ashley Loomis
Katie Cashin
End of 1st Panthers down by 3 (11-14) vs. Coyle Cassidy. @FHSSports @fhsgvbasketball pic.twitter.com/CrzCtj1jjl— Sandy Sauer (@FHSCoachSandy) December 21, 2017
Franklin Boys beat Sharon 91-47! Way to go boys! 2-0 to start the season let’s keep it up. #GoPanthers pic.twitter.com/fjaHeF4BjW— FHS Boys Swim (@FHSBVSWIM) December 21, 2017
FHS Panthers |
Lifelong Community Learning Announces Classes |
ABOUT US: Lifelong Community Learning is a program of the Franklin Public School’s Lifelong Learning Institute, dedicated to providing diverse and enriched education and experiences for all area residents and children – a resource for all ages.
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"The Tri-County Regional Vocational Technical High School is in a quandary about how to fund at least $12 million in repairs to the school’s roof, windows, doors and parking lot.
Officials noted that many things at the school are original to the more than 40-year-old building, and are in dire need of replacement or repair. Facilities Director Thomas Shanahan said the building is the same age as the old Franklin High School, which the town tore down and replaced with the current $100 million structure a few years ago.
Superintendent Stephen Dockray said this week that the school had applied to the Massachusetts School Building Authority for help, but had been denied. School officials, he said, are considering ways in which the needed projects might be funded."
Tri-County Regional Vocational Technical High School |
"Citizen proposals calling for a $15 minimum wage, a paid family and medical leave program, a sharp reduction in the sales tax, nurse staffing requirements in hospitals, and a Citizens United commission have garnered enough certified signatures to qualify for the 2018 ballot, Secretary of State William Galvin’s office confirmed Thursday morning.
Two other proposals -- imposing a 4 percent surtax on household income above $1 million and repealing the 2016 transgender anti-discrimination law -- had previously met 2018 ballot eligibility requirements, although the income surtax is being challenged in the courts by opponents.
Petitioners behind the proposals deemed newly eligible for next year’s ballot submitted more than the 64,750 signatures required by the constitution. The measures will now be transmitted from Galvin’s office to the Legislature for their consideration."
"Phyllis Calvey, author of “The Butterfly Club: Is That You?”, recently donated her book to the newly renovated Franklin Public Library. Over the years she presented many programs in Franklin and has great memories of the warm community there.
Reading a particular book is often inspired by the feelings a season brings, and Calvey’s book is a perfect read as winter ushers in the season when nature is dying and returning back to the earth.
And yet winter can tell things that summer will never know as we see and experience how that life returns again in the spring."
FREE Recovery Yoga to all struggling with Substance Use Disorder |
Franklin High School - should the start time be later? |
Great 56-3 win over Milford. Pins from Bakalars, Remillard, Racca, Cogavin, Johnson, and Coughlin. Tech from Jordan Carlucci.— Franklin Wrestling (@FHSWrestle) December 21, 2017
8-0 win vs Leominster!!! Goals by Connelly (2), Hedvig (2), Paterson, Carter, Pisano, and Dwyer🏒 Stott with a shutout #Juicem’ 🍋— FHS Girls Hockey (@fhsvgockey) December 21, 2017
FHS Panthers |